Skift Take
My Well being, My Knowledge is a game-changing new shopper privateness legislation centered on well being information that needs to be on the radar of each assembly skilled.
Washington state enacted the My Well being My Knowledge Act to guard the privateness of shopper well being selections and well being information. Knowledge safety issues are heightened after the 2022 reversal of Roe v. Wade. States have begun creating laws that protects shopper well being info. This may impression assembly professionals.
My Well being My Knowledge Act (HB 1155) handed the Washington State Legislature on April 17, 2023. Signed into legislation by Governor Jay Inslee on April 27, 2023, it goes into impact on March 31, 2024.
“Necessary info like meals allergy symptoms and ADA necessities which might be usually collected by assembly organizers will likely be thought-about protected info below this new legislation,” says Jill Blood, VP, Deputy Normal Counsel and Privateness Officer at Maritz. “In lots of instances, an attendee will now must choose into the gathering or sharing of such a info.”
Beneath the act, particular necessities relating to how and when private well being information is collected, saved, and shared are regulated.
The brand new laws additionally features a personal proper of motion that enables people to file lawsuits or take authorized motion to implement authorized rights below a statute. This will likely create a flurry of particular person lawsuits below the brand new legislation.
“The personal proper of motion signifies that there could also be people who search for these sorts of violations to be able to acquire penalties,” says Blood.
Studying Curve
Maritz is educating its purchasers about this new legislation and what it means to them. “Planners now must ask attendees if they provide consent to gather, retailer, and share well being info like meals allergy symptoms,” says Blood. “My Well being My Knowledge provides individuals management over when and the place their well being info is shared.”
Equally, on June 2, 2023, the Connecticut state legislature handed an analogous invoice. It comprises provisions imposing new necessities associated to shopper well being information. Though narrower in scope than the Washington My Well being My Knowledge Act, it additionally strengthens protections for well being information. Likewise, on June 16, 2023, Nevada enacted Senate Invoice 370. It imposes restrictions on the gathering and use of shopper well being information.
Meals allergy and inclusivity professional (and founding father of thrive!) Tracy Stuckrath says it is a difficult problem. Whereas talking at an occasion, an attendee requested a Kosher meal. An lawyer prompt she proceed with warning with the request and the way it was shared, explains Stuckrath.
Particular language have to be included in registration supplies, she says. “I give consent for [insert event name] to gather and retailer info associated to my dietary must be used for functions of offering agreed upon lodging,” is what Stuckrath suggests.
Equally, Stuckrath stresses asking attendees what ADA lodging they want at an occasion within the registration course of. As well as, whereas not at all times acknowledged as such, dietary wants are vital elements of ADA compliance, she says.
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